Karen knows first-hand what it's like experience physical declines from ALS. Read her tips for navigating everyday life with a degenerative disease.
Chronic Illness & Disability
If you don’t have a disability or chronic illness yourself, you probably know someone who does. More than 60% of U.S. adults have a chronic illness and more than 25% have a disability.
What Exactly IS a Disability?
A disability is a condition of the mind or body that makes it harder to do certain activities or interact with the world around you. A chronic illness lasts 1 year or more and needs ongoing medical care or limits daily activities.
The kinds of disabilities and chronic illnesses vary — from autism to hearing loss to cancer. Types of brain injury, mental health issues, and learning disabilities also count.
Visible & Invisible Conditions
Some are visible, like your friend with cystic fibrosis who uses an oxygen tank or your neighbor who uses a wheelchair.
But you don’t always know if someone has a disability or chronic illness. Maybe your aunt doesn’t walk with a cane, but she uses a handicap parking pass because arthritis makes it painful to walk long distances. Or your coworker might have chronic migraines.
Layers of Challenges
Whether visible or invisible, these conditions can make life hard. They can strain your relationships, drain your energy, and add stress to your job.
In addition, people with chronic illness and disability have historically faced severe social stigma and discrimination. While we’ve made a lot of progress, many still face physical and other barriers.
Learning from People With Chronic Illness & Disability
Still, people with chronic illnesses and disabilities can and do thrive. They offer diverse points of view and unique strengths.
At UVA Health, we believe an inclusive environment helps everyone. Listening is an important first step toward inclusion. It helps us understand people’s unique gifts and needs — how they can help us and how we can help them.
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Here we share stories from individuals living with disabilities and chronic illnesses.
An ALS prognosis is bleak. Read how one beloved doctor with ALS is taking action to get treatments approved faster.
Experiencing disability discrimination in the workplace? Taking the initiative to ask for what you need may lead to greater job satisfaction and success.
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Are you a parent with a serious illness that won't ever get better? Here are 7 tips on talking to kids about growing up with a chronically ill parent.
Communication, even with loved ones, is tricky. Brenda Doremus-Daniel, LCSW, a UVA Health psychotherapist, reviews things not to say to someone with a chronic illness.
Approximately 100,000 Americans are currently living with sickle cell disease, according to the CDC.
Ozzy Osbourne, rock star and TV personality, recently revealed his Parkinson’s disease diagnosis. This movement disorder affects about 10 million people worldwide. Learn about Parkinson's disease, parkinsonism and getting support.
If you’ve ever experienced a migraine, then you know it’s much more than just a headache. Learn more about the common and not-so-common treatments that may provide relief to your debilitating symptoms.
Abby Loden lives in Mississippi and travels to UVA for care. She wrote this post about the challenges and triumphs of living with this rare disease.
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