TSC causes benign tumors anywhere in the body. Derek Bauer, MD, can empathize with his TSC patients, because he lives with it, too. Read his guest post.
Chronic Illness & Disability (Page 2)
If you don’t have a disability or chronic illness yourself, you probably know someone who does. More than 60% of U.S. adults have a chronic illness and more than 25% have a disability.
What Exactly IS a Disability?
A disability is a condition of the mind or body that makes it harder to do certain activities or interact with the world around you. A chronic illness lasts 1 year or more and needs ongoing medical care or limits daily activities.
The kinds of disabilities and chronic illnesses vary — from autism to hearing loss to cancer. Types of brain injury, mental health issues, and learning disabilities also count.
Visible & Invisible Conditions
Some are visible, like your friend with cystic fibrosis who uses an oxygen tank or your neighbor who uses a wheelchair.
But you don’t always know if someone has a disability or chronic illness. Maybe your aunt doesn’t walk with a cane, but she uses a handicap parking pass because arthritis makes it painful to walk long distances. Or your coworker might have chronic migraines.
Layers of Challenges
Whether visible or invisible, these conditions can make life hard. They can strain your relationships, drain your energy, and add stress to your job.
In addition, people with chronic illness and disability have historically faced severe social stigma and discrimination. While we’ve made a lot of progress, many still face physical and other barriers.
Learning from People With Chronic Illness & Disability
Still, people with chronic illnesses and disabilities can and do thrive. They offer diverse points of view and unique strengths.
At UVA Health, we believe an inclusive environment helps everyone. Listening is an important first step toward inclusion. It helps us understand people’s unique gifts and needs — how they can help us and how we can help them.
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Here we share stories from individuals living with disabilities and chronic illnesses.
Like others with CF, Michaela Blosser's excited for the Five Feet Apart movie to raise awareness about cystic fibrosis. But will the film's romantic plot get the facts wrong?
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Your LGL leukemia prognosis will determine the type of treatment you need. Learn about the treatment options available to you.
Shira Strongin was diagnosed with Ehlers-Danlos Syndrome, along with other rare diseases. She came to UVA and was treated by Dr. Kenneth Liu.
With the proper care and treatment, HIV-positive people can have normal lifespans, healthy lives, romantic relationships, even children.
For most people, going to the dentist is inconvenient and perhaps mildly painful. But for individuals with special needs or complex medical problems, even the most routine dental care can present overwhelming pain and fear.
You’ve probably never heard of it, and you may not be sure how to pronounce it. Yet neurofibromatosis (NF) affects millions worldwide, according to the Children’s Tumor Foundation. And given that May is Neurofibromatosis Awareness Month, we thought we’d introduce you. Part of a group of genetic conditions that cause…
Popular ideas about the symptoms of dementia or Alzheimer’s conjure up images of forgetfulness, a person lost in a familiar place or unable to recognize loved ones. [caption id="attachment_10009" align="alignright" width="225"] Chris initially responded to the FTD and ALS diagnosis by jumping into light weights and swimming.[/caption] This is not…
When Mary Nay turned 70, she celebrated by walking a mile at her gym. The next year, she turned 71 and walked two and a half miles. Her commitment to fitness would be impressive no matter what, but Mary has cerebral palsy and walks with two canes. She has muscular…
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