My dad doesn’t know the difference between texting and tweeting. So when I told him I had just taken the ALS Ice Bucket Challenge, I expected I’d have to explain just what that was. Instead he said, “Oh, that’s really cool!” [caption id="attachment_8702" align="alignright" width="350"] UVA neurologists take the ALS…
Chronic Illness & Disability (Page 3)
If you don’t have a disability or chronic illness yourself, you probably know someone who does. More than 60% of U.S. adults have a chronic illness and more than 25% have a disability.
What Exactly IS a Disability?
A disability is a condition of the mind or body that makes it harder to do certain activities or interact with the world around you. A chronic illness lasts 1 year or more and needs ongoing medical care or limits daily activities.
The kinds of disabilities and chronic illnesses vary — from autism to hearing loss to cancer. Types of brain injury, mental health issues, and learning disabilities also count.
Visible & Invisible Conditions
Some are visible, like your friend with cystic fibrosis who uses an oxygen tank or your neighbor who uses a wheelchair.
But you don’t always know if someone has a disability or chronic illness. Maybe your aunt doesn’t walk with a cane, but she uses a handicap parking pass because arthritis makes it painful to walk long distances. Or your coworker might have chronic migraines.
Layers of Challenges
Whether visible or invisible, these conditions can make life hard. They can strain your relationships, drain your energy, and add stress to your job.
In addition, people with chronic illness and disability have historically faced severe social stigma and discrimination. While we’ve made a lot of progress, many still face physical and other barriers.
Learning from People With Chronic Illness & Disability
Still, people with chronic illnesses and disabilities can and do thrive. They offer diverse points of view and unique strengths.
At UVA Health, we believe an inclusive environment helps everyone. Listening is an important first step toward inclusion. It helps us understand people’s unique gifts and needs — how they can help us and how we can help them.
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Here we share stories from individuals living with disabilities and chronic illnesses.
Helena Frischtak, a third-year medical student working in different clinics and parts of the hospital as part of her training, contributed this post. In the hospital, people come and go. Rooms take on new patients, and doctors take on different rooms. When you start to know a patient better, he…
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